Tara Hendrickson's Conquer Chiari Walk Across America
The Conquer Chiari Walk Across America is a series of coordinated walks held on the same day across the country in order to raise awareness of Chiari, raise money for research, and to get people involved. It is our goal to have at least one walk in each of the 50 states and raise at least $300,000 for research. In 2009, more than $250,000 was raised with 90% of the money going directly to fund exciting, new research projects.
Message from Tara:
Please help me raise money for Chiari Malformation research. I was born with Chiari and had decompression surgery October of 2005. It is still something I struggle with everyday. Please help me and others with conquering this!
Tara's goal is to raise $200 for this cause. My son has Chiari Malformation type one which they say is "minor" but he has had many of the symptom and we are only 7 months in diagnosis and he is only 5 years old.
Tara is a great person and has helped me so much learning about this disorder and helping me through my thoughts and being scared for my son.
Please take the time to help her spread the word and make a donation if you can. Even $1 helps!!!
Chiari Malformation (Arnold-Chiari) is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.
Quick Facts About Chiari Malformation:
- Affects more than 300,000 people in the US; 30% of children born with spina bifida are also born with a Chiari Malformation.
- Causes a wide ranging, diverse set of symptoms. Research has shown that 95% of patients experience at least 5 symptoms.
- Diagnosed using combination of MRI, neurological exam, physician’s judgment, and other tests; patients often go 5 or more years before being properly diagnosed.
- A study of over 300 Chiari Malformation patients found that 57% had at one time been told by a doctor they were suffering from a mental or emotional problem.
- Many patients undergo serious brain surgery in an attempt to stop symptoms from progressing.
- Research has shown that surgery can improve symptoms for about 80% of patients, but fails about 20% of the time.
- Chiari can place a tremendous physical, mental, emotional, and economic strain on patients and their families.
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